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Why donate to the Gene Partnership at Children’s Hospital Boston?
You can make a difference. The Gene Partnership at Children’s Hospital Boston and Harvard Medical School has a simple, yet audacious goal: to identify those at risk for a disease before it strikes and head it off at the pass, so children can lead long and healthy lives through adulthood. We have a detailed, strategic plan outlining every milestone and investment necessary to put in place the infrastructure to achieve this goal – in a “science-driven, business-supported” environment.
We have the best team in the world. We have the best environment in the world. We have a track record of success. The foundation is built. Now we need to leverage that investment to make a public health impact in disease.
Your gift, in any amount, no matter how small, will help get us there. Already, generous donors like you have helped our scientists develop the platform technologies. Now we must roll the platform out globally, populate the database with the genomes of millions of individuals, and fuel the scientific investigation into what causes the devastating diseases that affect our children and their futures.
Children’s Hospital Boston is one of only a handful of medical centers in the world that can build a pediatric database at the scale necessary to achieve real success. As the nation’s premier pediatric hospital, Children’s treats a large and remarkably diverse patient population – more than half a million children a year. Because we are an international referral center and our services span primary through quarternary care, we have large concentrations of patients with diseases it would take years to adequately represent through random sampling.
Yet even this isn’t enough. Connecting the dots between symptoms, genes, diagnoses, and treatments to the degree we envision will require a massive, multi-institutional global effort. The Gene Partnership is therefore designed for wide-scale collaboration. All of its components will be available under an open-source license. Further, the Gene Partnership architecture allows each institution to maintain control of its own repository while still contributing to the data-bank, eliminating the tension between institutional ownership and data-sharing that too often dooms collaborative projects.
Every gift counts as we race the clock to:
- Unravel and finally understand diseases like autism and muscular dystrophies
- Develop new methods for early diagnosis of these disorders
- Develop new therapies to treat these disorders effectively and with no side-effects
- Keep patients informed and up-to-date with information that may save their lives in the future by keeping them “on the grid”
- Chaperone these new tools and strategies into clinical practice
- Optimize the healthcare endeavor nationally and globally by developing new standards of care, developing new policy, and continuing to pave the way as Children’s has always done.
Dream | Dare | Deliver
Donate today online or, for information about leadership giving opportunities, please contact Jane Hamel by completing the form below.
